tag:blogger.com,1999:blog-3736078099133744079.comments2023-09-17T05:04:21.690-07:00Goddess of Frog HollowThe Goddesshttp://www.blogger.com/profile/13685365848381313282noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-3736078099133744079.post-71721943840751107472014-06-26T02:48:52.660-07:002014-06-26T02:48:52.660-07:00I wish people understood how I feel. This article ...I wish people understood how I feel. This article explains my situation as tion perfectly. It's not easy being in pain. I'm always tired. I wish I could get help but I can't afford it. I'm gonna start hashtagging spoonie from now on. Thanks for explaining everything perfectly. Anonymoushttps://www.blogger.com/profile/03465676239059719682noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-11980404507781034992013-05-18T10:12:38.054-07:002013-05-18T10:12:38.054-07:00Hi ...fibro friend lol ....havin a masdive flare u...Hi ...fibro friend lol ....havin a masdive flare up right now sooo started searching for more answers AGAIN!! Busy working mum with a Mini zoo in desperate need for tips on coping . Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-44237864543164976072013-05-05T20:26:53.729-07:002013-05-05T20:26:53.729-07:00Yes, I've gone through excactly the same comme...Yes, I've gone through excactly the same comments/attitudes not only from people in general but from doctors as well, which is much worse. There is a massive lack of reliable information within the health services and in the community.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-6075141028049288472012-06-01T18:04:23.969-07:002012-06-01T18:04:23.969-07:00I also wondered what #spoonie is only to realize i...I also wondered what #spoonie is only to realize it's ME! haha- not sure if I should blame the fibro fog or my inability to read tweets. Thanks for the blog, I love your writing :)Andrea Hayeshttp://www.twitter.com/andreahayznoreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-9015155987392662482011-09-13T07:50:22.313-07:002011-09-13T07:50:22.313-07:00came looking to understand the term spoonie! my po...came looking to understand the term spoonie! my posts get shared with that tag all the time...and yeah, lo and behold, I'm a spoonie too...also drug free now :-)<br /><br />nice to meet you.Giannahttp://bipolarblast.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-57450800987849727992011-07-06T20:11:16.925-07:002011-07-06T20:11:16.925-07:00Yeah...this is kinda crazy but Im looking at a pho...Yeah...this is kinda crazy but Im looking at a photo of my ggggg grandfather. So somewhere far far down the line we're related. But I was wondering if there was anyway to get ahold of Ross.Donniehttps://www.blogger.com/profile/11363045505257136204noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-27692517844488749212011-04-25T07:13:47.540-07:002011-04-25T07:13:47.540-07:00Your mother is indeed beautiful;she is my sister.
...Your mother is indeed beautiful;she is my sister.<br /><br />UPAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-22123724559524965312011-02-06T18:52:30.217-08:002011-02-06T18:52:30.217-08:00I just found you after looking for hashtags to twe...I just found you after looking for hashtags to tweet, for an article I wrote yesterday, about having an "invisible illness". I am so glad to have found you, the tag, and the "spoonie" community! I have Cystic Fibrosis, by the way.<br /><br />I'll be sure to come back and spend some time here!!<br /><br />All my best,<br />K.B.K.B.http://sproutingdaisies.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-15747759277717647192011-01-21T10:42:54.641-08:002011-01-21T10:42:54.641-08:00This post made me smile - I've seen that exact...This post made me smile - I've seen that exact look! I hope Russell is still doing well and playing the role of the great hunter with gusto.Lori Robinetthttp://www.ellerobb.comnoreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-66171672718912958222010-11-05T02:25:33.326-07:002010-11-05T02:25:33.326-07:00t's nice to hear that the cases of toothaches ...t's nice to hear that the cases of toothaches dropped. I think the nationwide dental health campaign has been effective in its cause. Here in Maryland, <a href="http://thegermantowndentist.com/" rel="nofollow">dentists (Germantown</a>-based) visit several institutions to orient the community on the proper way of dental hygiene. Hopefully, in the succeeding years there would be less tooth decay problems in the US.Unknownhttps://www.blogger.com/profile/09280708825608116185noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-43093458997821696782010-06-18T01:56:43.675-07:002010-06-18T01:56:43.675-07:00brains...brains...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-533036124454131432009-11-01T14:41:41.229-08:002009-11-01T14:41:41.229-08:00lookes like u neded to put them in a incubator to ...lookes like u neded to put them in a incubator to hatchAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-75792528619135662332009-08-24T22:46:28.117-07:002009-08-24T22:46:28.117-07:00I tried repeatedly to put my comments on here and ...I tried repeatedly to put my comments on here and click on wordpress but it kept telling me I had illegal characters. Hmm,very difficult to post comment on here,but anywayz..liked your blog entry a lot :)<br /><br />Long time no Twitter :)<br />1cutechicwitfm on TwitterMia Mykahttp://micahsthoughtpad.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-7035351487033715432009-08-12T05:54:36.174-07:002009-08-12T05:54:36.174-07:00Can you pass this along via your blog, and to all ...Can you pass this along via your blog, and to all your contacts?<br /><br />Lupus Foundation of America Needs Your Help -- Urge Your Senators to Cosponsor S. 1630, the Affordable Access to Prescription Medications Act <br /><br />Go to http://capwiz.com/lfa/home/<br /><br />Click on the link "Urge Your Senators to Cosponsor S. 1630, the Affordable Access to Prescription Medications Act," enter your zip code in the box called “Call Now” and click on the “go” button. You’ll then be presented with the contact information for your senators, as well as get talking points for what to say when you call.<br /><br />Please ask your family, friends and coworkers to call on your behalf as well.Sophie - LFAhttps://www.blogger.com/profile/04688789367974778219noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-75301702332313031982009-04-27T14:59:00.000-07:002009-04-27T14:59:00.000-07:00Thank you for explaining this! I've wondered for a...Thank you for explaining this! I've wondered for ages what #spoonie means.NickBambridgehttps://www.blogger.com/profile/13161512257936820283noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-20558453103965188362009-04-12T22:24:00.000-07:002009-04-12T22:24:00.000-07:00Chronic Chick,Boy, can I ever relate! Flaring righ...Chronic Chick,<BR/><BR/>Boy, can I ever relate! Flaring right now as I recover from gallbladder surgery and so overtired I can't sleep. <BR/><BR/>Ready to cry from frustration and exhaustion. Checking in online in short spurts so my people don't worry too much.<BR/><BR/>I have tried all the vitamins. No noticible effects. How about you?The Goddesshttps://www.blogger.com/profile/13685365848381313282noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-42125861690581355192009-04-12T21:59:00.000-07:002009-04-12T21:59:00.000-07:00Hi there,Thanks for the comments. Haven't made it ...Hi there,<BR/>Thanks for the comments. Haven't made it back been in a major flare. Haven't been on computer for 3 days and well forcing myself now. Its like I'm walking a marathon just to sit up. Can't stand to sit up for too long. I keep falling asleep and we start back to school tomorrow. So I hope I can function tomorrow. Like your poetry sharing. I like to be crafty too, but my energy defeats that purpose. I overdue I pay for it one way or the other. This crap plain old sucks. Have you tried The Omega 3's? Rhemo said it was okay for me.<BR/><A HREF="http://www.chronicchicktalk.com" REL="nofollow">Chronic Chick Talk</A>A Mom's Choicehttps://www.blogger.com/profile/04457208636628567188noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-53100911424018842152009-03-30T17:52:00.000-07:002009-03-30T17:52:00.000-07:00I just cut mine shoooooooooort too. My hair showe...I just cut mine shoooooooooort too. My hair showed up to the lupus war & lost. Love this post, sounds a lot like me. I'm still fighting on some of the girly things I can't give up just yet.Sheilahttps://www.blogger.com/profile/16088648997897145149noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-90638234614164630142009-02-23T17:12:00.000-08:002009-02-23T17:12:00.000-08:00Hey there!Thanks for stopping by my Blog today. I...Hey there!<BR/>Thanks for stopping by my Blog today. It's nice to talk with people who understand what your going through. Looking forward to reading your blog.Sheilahttps://www.blogger.com/profile/16088648997897145149noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-82970809858502302812009-02-22T23:59:00.000-08:002009-02-22T23:59:00.000-08:00thanks for dropping by my site. i hope you can loo...thanks for dropping by my site. i hope you can look for means to get back on the meds.<BR/><BR/>milet @ lupusurvivor.comMiLeThttps://www.blogger.com/profile/05489549457283350877noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-49258722474757987172009-02-22T21:23:00.000-08:002009-02-22T21:23:00.000-08:00I have got my medication for free from them. Also...I have got my medication for free from them. <BR/>Also you may want to check out payperpost.com , sponsoredreviews, add some google ads,and project wonderful. <BR/>Project wonderful pays after 10.00. I've known some people that have made a lot of money these ways. Hope you feel better :)<BR/>If I think of anything else I'll come back, would you like to exchange links.<BR/><BR/>Chronic ChickA Mom's Choicehttps://www.blogger.com/profile/04457208636628567188noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-27545554915694047282009-02-21T10:39:00.000-08:002009-02-21T10:39:00.000-08:00Very cute mascot. He makes me smile.Very cute mascot. He makes me smile.glentwistlehttps://www.blogger.com/profile/03806494411263252743noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-42427470313831627772009-02-01T02:49:00.000-08:002009-02-01T02:49:00.000-08:00I got an 87%. I think we're both in trouble! If t...I got an 87%. I think we're both in trouble! If the lupus doesn't get us, our cats will! :-)Nevahttps://www.blogger.com/profile/05999831618249137613noreply@blogger.comtag:blogger.com,1999:blog-3736078099133744079.post-89940179008180755492009-01-07T22:25:00.000-08:002009-01-07T22:25:00.000-08:00Oh my God, I want a pair of my own!!Oh my God, I want a pair of my own!!Nevahttps://www.blogger.com/profile/05999831618249137613noreply@blogger.com